PRIVACY POLICY

The Enzo & Me Pediatric Cancer Foundation, a registered non-profit corporation with the state of California (501(c)(3) status pending) (“ENZO & ME”), is committed to protecting the privacy and confidentiality of personal information entrusted to us. We have designed this Privacy Policy to answer questions regarding our privacy principles and practices.

Personal Information

This Privacy Policy is applicable to all users (“Users”) of the ENZO & ME website found at https://www.enzoandme.org/. (the “ Website”), as well as other websites developed by ENZO & ME now or in the future (“ENZO & ME Sites”) and ENZO & ME web pages on third party sites such as Facebook and Instagram (“Third Party Sites,” and together with the Website, and the ENZO & ME Sites, the “ Sites”) and all Users of the Sites who provide personal identifiable information (“personal information”). When this Privacy Policy uses the term “personal information”, we mean information that identifies a particular individual, such as the individual’s name, postal address, email address and telephone numbers. Some jurisdictions may call personal identifiable information “personal data” or “personally identifying information,” and may include opinions about or related to a User within the definition of personal information.

Scope

This Privacy Policy addresses our policies and procedures relating to the personal information of individuals. This Privacy Policy is intended to assist you in understanding ENZO & ME’s policies and procedures relating to our management of personal information and is applicable to ENZO & ME, its successors and assigns, and any affiliates of ENZO & ME . This Privacy Policy is applicable to the personal information of all Users of the Sites. Please note that each Third Party Site has its own privacy policy and terms of service that are not affected by this Privacy Policy or the Terms of Use governing our Website (the “Terms of Use”).

Information Collected by ENZO & ME

ENZO & ME collects personal information that is voluntarily provided by you when you explore the Sites, make a donation, use our Services (as defined in the Terms of Use), register for an Event (as defined in the Terms of Use), purchase an item from the Shop, submit comments to the Sites, or communicate with us by mail, telephone or electronically. The type of information we collect and maintain may include:

  • Names, mailing addresses, and/or email addresses
  • For children: the name, mailing address and/or email address of a parent or legal guardian
  • Telephone number
  • Gender
  • Date of birth
  • Purchase history
  • Donation and fundraising events and history
  • Comment communications and photos
  • Complaints you may have about the Sites and any of their content and offerings.

This type of information is collected, used and disclosed in accordance with the form of consent required by applicable law and its use is limited to the objectives for which it was collected, as described in this Privacy Policy.

We may collect information through technology for routine system administration purposes, to make our Website more interesting and useful to you, to manage content delivery and for various other purposes related to our foundation. We use this information to understand which areas of our Sites are most appealing or least appealing, or to deliver content that is specific to your country or area of residence.

For instance, when you come to one of our Sites, we may collect your Internet Protocol (“IP”) address. An IP address is associated with the access point though with you enter the Internet, and is typically controlled by your Internet Service Provider (“ISP”), your company or your school. Standing alone, your IP address is not personally identifiable. We may use IP addresses to collect information regarding the frequency with which Users visit various parts of our Sites, and we may combine IP addresses with personally identifiable information.

ENZO & ME may also collect information that is stored in cookies, and we may associate this information with your personal information. Cookies are small pieces of information stored on your hard drive, not on our Sites. We use cookies for a number of reasons. Cookies allow you to store your password without having to constantly re-enter it. Cookies also help us to tailor messages that better match your needs and interests, and they allow us to better understand how Users in general use our Sites, which in turn helps us to focus our resources on features that are most popular with our Users. You are always free to decline our cookies if your browser permits, but some parts of our Sites may not work properly if you do. Additionally, ENZO & ME may use first-party and third-party cookies for integrated services, external services, and applications that our website(s) support. 

We may also collect other types of information such as gender, age, number of children, and personal interests, which we may associate with personal information. If you purchase products or services from us, we may retain, for example, contact information, the type of services or products ordered or purchased, and the date of the order or purchase. You may also provide us photographs or other video materials, which may contain personal information. We may collect personal information when you register on, log on, or visit our Sites. Finally, our Sites may offer message boards, conversation pages, profile pages, blogs, fundraising pages, public forums and other features in which you provide us with User Content. If you provide personal information when you use any of these features, that personal information may be publicly posted and otherwise disclosed without limitation as to its use by a third party. Our rules regarding User Content are described in the Terms of Use.

Consent

We reserve the right to collect, use and disclose your personal information without consent where required or permitted by law. We do not sell your data to third parties. 

Otherwise, personal information will be collected, used and disclosed in accordance with the form of consent required by applicable law and its use will be limited to the objectives for which it was collected as described herein. The form of your consent can vary from implied consent to express consent, depending upon the circumstances and the sensitivity of the type of information collected. We will rely on implied consent when we can reasonably conclude that you have given your consent by your action (e.g., by giving us your name and contact information so that we may send any Gift Shop items you have ordered or to provide you with any Services) or inaction (e.g., by not exercising an ability to opt-out that is provided to you at the time your contact information is collected). This Privacy Policy identifies the purposes for which your personal information is collected, used and disclosed. Additional consent will be obtained from you should we wish to use or disclose your personal information for any additional purpose.

Why Does ENZO & ME Collect Personal Information?

ENZO & ME collects personal information for the following reasons:

· To provide you with the information, products or services you have requested, including processing your payment or donation;

· To better understand you and to allow us to serve you better through more detailed information, enhanced customer service and directed ENZO & ME promotional efforts of particular interest;

· To properly investigate and respond to any complaints, questions or concerns you may have about our products or our Website; and

· To determine your eligibility for our products and services.

If you opt in to receive information, offers, promotions or other content from ENZO & ME, your information will be used to provide you with offers for ENZO & ME products or information that we believe may interest you and to solicit your opinion on our products, services and information. If you have opted in to receive such information and offers, we may also use your personal information to ensure that your contact information is accurate and up to date.

What Kind of Personal Information Does ENZO & ME Disclose, to Whom and Why?

ENZO & ME may share your personal information with certain ENZO & ME affiliates, and their respective successors and assigns, but only to the extent necessary to fulfill the purposes identified above. In addition to this sharing with affiliates, ENZO & ME may disclose your personal information to third parties as follows:

1. To Third Parties To Perform Processing and Other Specialized Services: At times, ENZO & ME may use outside organizations to perform specialized services such as, but not limited to, credit card processing and order fulfillment. These service providers are only given the information needed to perform those services and they are bound contractually to protect the privacy and security of your information and to limit the use of your information to the service being provided.

2. To Third Parties in the Event of Legal Reasons: We advise you that we may disclose personal information to the government or other legal or regulatory authorities (i) if so ordered by a court of law, or (ii) for other legal reasons, such as (a) to comply with legal process such as a search warrant, subpoena or court order; (b) to protect ENZO & ME’s rights and property; (c) to investigate reports of fraud or of Users sending material using a false email address or Users sending harassing, threatening, or abusive messages; (d) to protect against misuse or unauthorized use of our Website; or (e) in emergencies, such as when we believe someone’s physical safety is at risk. In some cases, disclosure to third parties may be required by law to be without notice to you.

3. To a Third Party in the Event of a Significant Transaction or Other Event: In the case of any significant transaction or event involving ENZO & ME or any of its affiliated entities such as, by way of example, a sale, merger, amalgamation, financing, re-organization, liquidation, or insolvency, other parties to the transaction and their professional advisors may need to have access to ENZO & ME’s various databases as part of the due diligence process. In this event, ENZO & ME would only provide such access under terms of a strict confidentiality agreement. Upon completion of the transaction or event, your personal information would be transferred to ENZO & ME’s successor-in-interest.

You May Disclose Personal Information on an ENZO & ME Site

ENZO & ME provides several opportunities on our Website and on Third Party Sites to disclose personal information, such as when you list upcoming fundraising activities on a user page or in connection with your use of other Services provided by ENZO & ME. Our Sites may offer message boards, conversation pages, profile pages, blogs, fundraising pages, public forums and other features in which you provide us with User Content. Your use of these features and your disclosure of personal information with respect to these features is completely voluntary; however, if you provide personal information when you use any of these features, that personal information may be publicly posted and otherwise disclosed without limitation as to its use by a third party.

How Long Does ENZO & ME Retain Personal Information?

We may keep your personal information until we no longer retain it, or until you ask us to delete it, subject to any legal requirements, including statutory retention periods. 

What Security Measures Does ENZO & ME Have in Place To Safeguard Personal Information?

ENZO & ME has implemented physical, electronic and administrative measures to protect your information from error, loss or unauthorized access. Examples include the use encryption, passwords and firewalls to safeguard the confidentiality of your personal information contained on our computer systems. In addition, our employees and any third parties we use are contractually bound to protect the confidentiality of your information and access is restricted to those with a need to know the information to carry out the identified purpose. From time to time, we review our security procedures to protect our Users’ personal information in order to consider appropriate new technology and methods; however, despite our efforts, no security measures are perfect or impenetrable.

Where is my Personal Information Located?

Your personal information may be stored and processed in servers, including those of our authorized third parties, currently located in the United States. These servers shall always be subject to the safeguards described in this Privacy Policy to protect against unauthorized collection, use or disclosure, and you shall be able to access the personal information stored in such servers in accordance with this Privacy Policy.

Non-Personal Information

Non-personal or aggregated information is information that cannot be associated with or traced back to a specific person. When Users browse our Website, for example, we may gather information about the number of Users who are viewing each page so that we can learn what features generate the most interest. We also use this data, both aggregated and personally identifiable, to personalize and enhance your onsite experience by displaying content that we believe will be of interest to you and to deliver content that is specific to your interest. We may disclose anonymous, aggregated information about our Sites to third parties.

Links to Third Party Sites

Users may, through hypertext or other computer “links,” gain access to other websites on the Internet which are not operated or monitored by ENZO & ME. ENZO & ME is providing these links to you only as a convenience, and the inclusion of any link does not imply endorsement by ENZO & ME of the website or content linked to. ENZO & ME ASSUMES NO RESPONSIBILITY FOR ANY MATERIAL OUTSIDE OF THE WEBSITE OPERATED BY ENZO & ME AND ITS AFFILIATES, INCLUDING ANY WEBSITE WHICH MAY BE ACCESSED THROUGH A LINK ON AN ENZO & ME-OPERATED SITE. Unless otherwise indicated at an ENZO & ME-operated Site, ENZO & ME is not sponsored by or affiliated with the linked website, and trademarks used in connection with linked website are not trademarks of ENZO & ME. ENZO & ME specifically disclaims responsibility for any inadvertent viewing by a minor of any material intended for adults on a website accessed through use of a linked website.

How To Control How Your Personal Information is Collected, Used and Disclosed

You have control over how we collect, use and disclose your personal information. Any comments, questions or changes regarding the collection, use and disclosure of your personal information shall be directed to an ENZO & ME representative, as described in the next section.

You may choose not to receive email from us, even after granting permission, by unsubscribing. Instructions on how to unsubscribe from emails that are not related to processing of your transactions with us are included in each such email.

A request for a copy of the personal information we keep about you, depending on the laws of your country, must be made giving details with which ENZO & ME can identify you. Information will be furnished in accordance with applicable law. You may only make a personal information request twice in a 12-month period.

Questions, Comments or Accessing or Updating Your Personal Information:

If you have any questions or comments about ENZO & ME’s Privacy Policy, would like to advise us how you would like your personal information not to be used or disclosed, or would like to access or update your personal information please contact us. You may also call or write to us.

Please note that certain information is required by ENZO & ME to process payment and fulfill any orders or donations that you may place through the Website, and if you withdraw your consent to the collection, use or disclosure of your personal information for these purposes, then ENZO & ME will not be able to fulfill your orders or process donations.

Acceptance of Privacy Policy/Amendments to Privacy Policy

By accessing, browsing or using this Website or by submitting your personal information to ENZO & ME, you signify your agreement to the terms and conditions of this policy. If you do not agree to this policy, please do not submit your personal information to us. We reserve the right, at our discretion, to change, modify, add or remove portions of this Privacy Policy at any time. If, at some point in the future, there is a material change to our information usage practices that affects your personal information, you will be notified of such change by a conspicuous posting on the Website and will be prompted to elect whether or not you agree to the change. Depending on the changes made, you may be unable to utilize the Website if you choose not to agree to a modification to this Privacy Policy. If any future change affects our payment processing and order fulfillment functions, or if you withhold your consent, we may not be able to continue to process payments or fulfill orders from you. Your acceptance of a revised policy, which may be communicated by clicking to indicate your consent for the continued provision of your personal information to ENZO & ME following the effective date of any changes to this Privacy Policy, shall mean that you have accepted those changes, subject to your continuing right to notify us at any time as to how you would like us to treat your personal information.

Users Outside of the United States

Our computer systems and some of the computer systems of our third party service providers are currently based in the United States, so your personal data will be processed by us in the United States where data protection and privacy regulations may not offer the same level of protection as in other parts of the world, such as the European Union. As a visitor from outside the United States, by using the Site you agree to this Privacy Policy and you consent to the transfer of all such information to the United States, which may not offer an equivalent level of protection of that required in the European Union or certain other countries, and to the processing of that information as described in this Privacy Policy.

Children’s Privacy

Types of personal information collected : Under the Children’s Online Privacy Protection Act (as amended, “COPPA”), “personal information” is defined as individually identifiable information, such as a first and last name; a home or other physical address, including street name and city or town; an e-mail address; a telephone number; a Social Security number; or persistent identifiers such as customer or processor serial numbers held in a cookie, where the identifier is associated with individually identifiable information. ENZO & ME may not collect personal information as defined under COPPA. We collect and use only as much information about a child as necessary for the activity, and do not condition participation in any online activity on the disclosure of more personal information than is reasonably necessary. Occasionally, we use cookies to store pertinent User information during a session.

We use the information we collect from children only for internal business purposes, for the child to participate on the Sites, and/or to give credit to children for work they have created. We contact children by e-mail only in response to their requests for information or assistance. ENZO & ME uses cookies solely for the purpose of holding information during online sessions. If, however, a child voluntarily discloses personal information, such as a name or e-mail address, on bulletin boards or in chat areas that are accessible to other Users, then such information could be collected and disclosed by others. ENZO & ME cannot take any responsibility for such collection or disclosure.

Involvement of parents

 

In accordance with the provisions of COPPA, we will notify parents when collecting personal information from children, and will seek parental consent before collecting, using, or disclosing certain personal information from children. Parents may review and have deleted their child’s personal information, and may refuse to permit further collection or use of their child’s information by contacting the ENZO & ME representatives listed herein. Parents may consent to our collection and use of their child’s personal information without consenting to the disclosure of that information to others. Parents and legal guardians may contact ENZO & ME as follow